Same but Different

Through our Rare Navigator service, we offer emotional and practical support and information to individuals, their families and all involved in their care, from the point of diagnosis and beyond.
Our family-focused care co-ordination and advocacy service aims to ensure that each family is able to access the level of support they require to meet their needs.
We work closely with national and local health and social care providers to ensure that our families are informed and have access to optimum care, treatment and services that can assist daily life and increase opportunities for independence and social interaction.